Having a transplant changes everything ...
One often forgets the "bad" things that CF brought to your life. Fortunately it's easy to forget the trouble breathing, struggling for air, coughing day and night, coughing until you loose your breath, etc ... that's until you're reminded of it again.
I often read about and follow other CFer's who are waiting for transplant, and remember the agonizing wait, the nights spent praying that "the call" would come, and the realization that life was ending. The problem with reading about this, is that it often times is quickly forgotten.
As the old saying goes ... " a picture is worth a thousand words". It wasn't until tonight when I saw one of Eva's videos, that my old CF life came roaring back ...
nights like these from Eva Dien on Vimeo.
As easy as it is to forget or block out the painful things in life sometimes, just one little glimpse of what reality use to be like, brings one right back ...
After watching this video, I remember myself in the same situation ... gasping for breath, wanting to be "normal", being frustrated to no end ... and it's scary! Unfortunately, Eva didn't have the opportunity to live her life over for the third time, but I thank her tremendously for being tough enough and having the compassion to record her most trying times. Most of us with CF have been there, or are there now.
Our looks can be so deceiving ... until we're laden with the oxygen tank, or until someone hears us coughing or trying to catch our breath. CFer's usually "look" healthy ... and we CAN put on a great facade! But remember, looks can be deceiving!
