Saturday, September 04, 2010

SURVIVING CYSTIC FIBROSIS - ASHLEY'S STORY

I had no idea when I initially was contacted by Ashley's mother, Caroline Donnelle just over a year ago, that Ashley would become one of those people who will leave a lasting impact on me.  I remember the contact well ... Caroline had informed me of Ashely's declining health, and with me just receiving a double-lung transplant a year earlier - and coming from out of province, she was eager to understand and get some "tips" on relocating to another province.

I remember our last conversation turned into more of confirmation - Ashley NEEDED a transplant, and Caroline was making sure that she WAS going to get one!  Now, that's a great mom indeed!  Caroline told me that she was leaving Montreal with Ashley and driving to Toronto.  I was horrified at the thought of trekking across provinces with oxygen, but I KNEW that Caroline would get her there safe and sound - and sure enough, it wasn't too long and I had heard from Caroline - they had arrived in Toronto and Ashley was hospitalized!!

I remember reassuring Caroline and Ashley that her time WOULD come - I kinda have a sixth sense about somethings and some people - and Ashley was one of those people.  It wasn't too long after and Caroline had emailed to let me know Ashley was gone into surgery.

Following a few "bumps", Ashley is now doing fantastic - and one great advocate for the CF Community!

Here's Ashley's story, covered by Macleans ...

SURVIVING CYSTIC FIBROSIS

I just hope that one day soon, we can meet in person!

3 comments:

Jess said...

What a great article! Thx! I never had realized, that CF won't kill us now that we've had tx.

Kelly's Venture said...

That's true! Unfortunately, the anti-rejection meds are not so accommodating to our bodies. But with all the research and new meds coming, we can pretty much live longer and healthier lives!

Seansjeep said...

This was a great article, Ive read it before! Yes Basically we trade our cf problems for other problems. but at least we can breath after :)